| 引用本文：高嘉敏, 马正.罕见病患者社会支持、社会保障与就医选择行为的关联研究[J].中国卫生政策研究,2021,14(4):35-41 |
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| 罕见病患者社会支持、社会保障与就医选择行为的关联研究 |
| 投稿时间：2020-10-06 修订日期：2021-04-10 PDF全文浏览 HTML全文浏览 |
| 高嘉敏1, 马正2 |
1. 北京师范大学社会发展与公共政策学院 北京 100875;
2. 中国食品药品国际交流中心 北京 100875 |
| 摘要:本文基于安德森卫生服务利用行为模型，构建罕见病患者就医行为影响因素的理论分析框架，利用2016年中国罕见病患者生存状况调查数据，重点考察社会支持、社会保障因素与罕见病患者就医选择行为的关联。实证分析结果表明，非正式社会支持与患者的卫生服务利用、就医选择行为呈显著正相关，社会支持水平越高，患者的就诊率、选择县级及以上医院就诊的比例更高。社会保险对罕见病患者的就医行为无显著影响，但是接受最低生活保障的患者就诊率更低，以基层医疗机构为主要就医选择。提升罕见病患者健康福祉和完善其防治和保障政策可更多关注改善患者的非正式社会支持水平，提高患者的社会保障待遇。 |
| 关键词:罕见病 就医行为 社会支持 社会保障 |
| 基金项目:北京师范大学综合专项“弱势人群保障与公共服务现状及改进策略研究”（03000-31223001） |
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| The association between social support, social insurance and healthcare-seeking behaviors among people with rare disease |
| GAO Jia-min1, MA Zheng2 |
1. School of Social Development and Public Policy, Beijing Normal University, Beijing 100875, China;
2. China Center for Food and Drug International, Exchange, Beijing 100875, China |
| Abstract:This paper used Anderson' health behavioral model to theoretically conceptualize factors that influence healthcare-seeking behaviors among patientswith rare disease. Empirical analysis was conducted using data from 2016 China Sample Survey for Survival among Patients with rare disease to examine the association between informal social support, social insurance and healthcare-seeking behaviors among patients with rare disease. Empirical analysis results showed that informal social support was related to healthcare service utilization and significantly influence the choice for medical facilities. Patients with better social support were more likely to access healthcare services in the past 12 months and seemed to secure healthcare service with better quality. There was no evidence shown that social insurance was significantly associated with healthcare-seeking behaviors among patients with rare disease, but those who had ever received a minimum living allowance had a lower rate of healthcare service utilization and were more likely to go for primary healthcare institutions to seek for healthcare services rather than choosing expensive healthcare treatment modes. Based on the results of this paper, it is suggested that the policies designed for promoting social support and improving social insurance among patients with rare disease should be strengthened and closely followed-up. |
| Key words:Rare diseases Healthcare-seeking behavior Social support Social insurance |
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