| 引用本文：陈丕楠, 贺小宁, 谢诗桐, 吴晶, 赵琨, 谢锋.中国人群健康相关生命质量概念框架构建：基于一般人群与疾病患者的质性研究[J].中国卫生政策研究,2024,17(6):1-9 |
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| 中国人群健康相关生命质量概念框架构建：基于一般人群与疾病患者的质性研究 |
| 投稿时间：2024-04-03 修订日期：2024-05-30 PDF全文浏览 HTML全文浏览 |
| 陈丕楠1,2, 贺小宁1,2, 谢诗桐1,2, 吴晶1,2, 赵琨3, 谢锋4 |
1. 天津大学医学部药物科学与技术学院 天津 300072;
2. 天津大学社会科学调查与数据中心 天津 300072;
3. 清华大学万科公共卫生与健康学院 北京 100044;
4. 加拿大麦克马斯特大学健康研究方法、证据与影响系卫生经济和政策研究中心 加拿大汉密尔顿 L8S4K1 |
| 摘要:目的：探索中国人群对于健康相关生命质量(Health-related quality of life，HRQoL)定义的理解，构建中国人群HRQoL概念框架，用于指导中国人群HRQoL测量工具研发。方法：从全国31个省市招募中国一般人群与疾病患者样本，通过开展一对一半结构化质性访谈收集其对HRQoL的看法与理解。基于扎根理论对质性信息进行多层次编码，利用框架法对编码进行梳理、归纳，构建中国HRQoL概念框架。结果：共纳入68名受访者，研究从质性信息中提取1 558个一级编码，分析整理为180个二级编码、31个三级编码，最终归纳出6个主题的中国人群HRQoL概念框架。结论：基于中国人群健康观念构建的HRQoL概念框架包含症状、身体功能、情绪、认知、活动、社会功能6个主题，其中尤以胃口/食欲、睡眠和疲乏维度显示出HRQoL概念的中国文化特异性。 |
| 关键词:健康相关生命质量 概念框架 中国人群 质性研究 |
| 基金项目:国家自然科学基金项目(72174142) |
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| Development of the conceptual framework for health-related quality of life in Chinese populations: A qualitative study based on the general population and patients |
| CHEN Pi-nan1,2, HE Xiao-ning1,2, XIE Shi-tong1,2, WU Jing1,2, ZHAO Kun3, XIE Feng4 |
1. School of Pharmaceutical Science and Technology, Faculty of Medicine, Tianjin University, Tianjin 300072, China;
2. Center for Social Science Survey and Data, Tianjin University, Tianjin 300072, China;
3. Vanke School of Public Health, Tsinghua University, Beijing 100044, China;
4. Department of Health Research Methods, Evidence and Impact, Centre for Health Economics and Policy Analysis, McMaster University, Hamilton L8S4K1, Canada |
| Abstract:Objective: To explore the understanding on health-related quality of life (HRQoL) among the Chinese populations and to develop a HRQoL conceptual framework that can be used to guide the development of Chinese HRQoL instruments. Methods: Respondents of Chinese general population and patients populations were recruited from 31 provinces in China. One-to-one semi-structured qualitative interviews were conducted to collect the views and perceptions on HRQoL. Based on the grounded theory, multi-level coding of qualitative interviews was carried out, and the framework method was used to sort out and summarize the coding to develop the HRQoL conceptual framework in China. Results: A total of 68 respondents were included in the study. The study extracted 1 558 open coding from the qualitative interview, which were analyzed and sorted into 180 axial coding and 31 selective coding (dimensions). The HRQoL conceptual framework for the Chinese population with 6 themes was finally summarized. Conclusions: The HRQoL conceptual framework based on the health concepts and preferences of the Chinese population contains 6 themes, refers to symptoms, physical function, emotion, cognition, activities and social function. In particular, the items of appetite, sleep and fatigue identifies may reflect Chinese cultural specific perceptions on important aspects of HRQoL. |
| Key words:Health-related quality of life Conceptual framework Chinese population Qualitative study |
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